WE NEED YOUR HELP
KIDS, PARENTS AND DOCTORS CAN JOIN THE MISSION.
KIDS AND PARENTS CAN HELP
Join the mission and hide your ultra-rare card the next time you visit to the doctor. Download the card sleeves. Help spread the word.
A MESSAGE FOR DOCTORS
We need your help looking for kids with ultra-rare diseases. An early diagnosis saves children with diseases that have treatments and gives those that don’t a chance to fight their fate.
Who's behind this PROJECT
A mother. A father. And a boy named Jonah.
Our inspiration is the Pokemon-loving, 8 year old Jonah. In 2011, he was diagnosed with Sanfilippo Type C, an ultra-rare diseases for which there is still no cure. That same year Jonah’s mom and dad formed Jonah’s Just Begun, a foundation that raises funds and then distributes them to academic researchers focused on Sanfilippo TypeC.
WE HAVE JUST BEGUN
Jonah’s Just Begun as two goals: first, to drive the science that will ultimately lead to a cure for Sanfilippo Type C; and second, to raise awareness for all rare diseases. We also empower and encourage others affected by rare diseases to advocate for cures.